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Post by antonskafi on Jul 22, 2017 11:35:38 GMT 2
Hi Friends;
Today it is almost five and a half months that we started the TPC. We have been passing through some high activities on some days and low activities on other days. I think that now is the right time to evaluate our work; I want you to comment on how we are doing, and what should we as the TCP team working from TIF Office change or improve in our work. Are we, as a group, doing well? Do we need to upbeat our activities? Is there anything that TIF or the moderators should add to these activities? should we do things in a different way?
Please don't hesitate to say what is in your mind, Every comment or opinion makes a difference.
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Post by Ela Pinguli on Jul 26, 2017 16:02:25 GMT 2
Hi Friends; Today it is almost five and a half months that we started the TPC. We have been passing through some high activities on some days and low activities on other days. I think that now is the right time to evaluate our work; I want you to comment on how we are doing, and what should we as the TCP team working from TIF Office change or improve in our work. Are we, as a group, doing well? Do we need to upbeat our activities? Is there anything that TIF or the moderators should add to these activities? should we do things in a different way? Please don't hesitate to say what is in your mind, Every comment or opinion makes a difference. |
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Post by Ranya Qasem on Jul 26, 2017 16:39:01 GMT 2
When I was first introduced to TPC, I loved the idea and was eager to be a part of it. I have always wanted to get in touch with other Thalassemia patients and care givers from all over the world. Now after I tried it and seen it myself, the experience was no less amazing. It's efficient and helpful for the patients, we work together really well, it is organized, every body gets time to ask and answer, and also it is fast, which is the most important feature nowadays. The only problem is that sometimes it gets a bit dull so I think we need new activities to keep everyone interested.
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Post by Ela Pinguli on Jul 26, 2017 16:41:02 GMT 2
First of all congratulations to the TCP team, disponibiliti. For me the TCP it is very useful because i read a lot about Thalassaemia and our problem. And many thanks to you Anton Skafi, you doing a wonderful job. It's important that in this TPC are also many doctors for our questions. And behind as is the TIF the big umbrella, this means we're not a alone.
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Post by Joydeep on Jul 26, 2017 16:54:28 GMT 2
I personally think it's a great idea to have such a platform where patients can interact with each other as well as ask questions to each other and the doctors.
Anton you are doing an absolutely amazing job moderating the platform and running things smoothly. Keep up the good work.
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Post by Gagandeep on Jul 27, 2017 0:35:02 GMT 2
Congratulations to the team for the effort taken to bring everyone under one platform as We can see fruits of the efforts been put in. Thals can clarify their doubts and help each other. Well done
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Post by Josephine on Jul 27, 2017 13:56:01 GMT 2
Great job to Anton and Rawad. The TIF group is interesting and I like having the ability to ask doctors questions. I don't particularly like forums and prefer Facebook or WhatsApp to communicate. That's only because I feel there are too many outlets for discussion and it's all so cumbersome. That's a personal preference. Each person has their own, which is why perhaps it's good to be available in all places.
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Post by shifneez on Aug 7, 2017 19:13:58 GMT 2
Hats off to TPC admin & team..👏👏👏
TPC gives great insight to a lot of things..like treatment and the challenges other thals face around the globe and learn how they cope with it....love the support for one another..we are like a global family now!!!
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